PIP resources

Yesterday the government released the final regulations for Personal Independence Payments. I haven’t absorbed enough detail to do a full blog post on this yet but these are some useful links related to it.


Read the new regulations: The Social Security (Personal Independence Payment) Regulations 2013

The new distance past which you are considered not to need assistance to walk is 20 metres. Jane Young has written a blog post on the results of this alarming regulation. Well over 100,000 to lose Motability vehicles under draconian new rules


The Government’s response to the consultation on the Personal Independence Payment assessment criteria and regulations

Watch the recording of the announcement of the regulations in Parliament (Jump to 11:19) or read the transcript

DWP: Personal Independence Payment – information for support organisations and advisers


More dirty tricks from government over welfare reform?

The welfare reform bill is back in the House of Commons after 14:30 today as part of “ping-pong” between the Commons and the Lords, but you wouldn’t know it if you relied on the usual methods of finding out.

The last event for this bill was debate in the House of Lords on the 14th and I have been checking the Parliament website and waiting for an email to inform me of the next event for the bill, to no avail. Until this morning the order of business for the House of Commons simply said “Consideration of Lords amendments if necessary” and until a few minutes ago the official Welfare Reform Bill web page still said that the next event was “To be announced”.

WRB webpage shows next event TBA
The WRB webpage at 11:15 today


The order of business for today and the official website have finally been updated with very short notice for the debate. This matters because MPs don’t always attend debates – they have many other things to do in their offices and their constituencies or elsewhere.


The agenda for today now includes:


Welfare Reform Bill – Consideration of Lords amendments”

And the website for the bill now says:

Next event

  • Ping Pong | 21.02.2012

An email has finally arrived in my inbox to inform me of this update. It carries a timestamp of 7:56 but it only turned up in the last half hour.

We have to ask why the announcement of this has been delayed until the day itself. Is this normal behaviour for Parliament? Or perhaps this is an effort to bury the bill in an effort to prevent MPs who plan to rebel from turning up?


With the government also having taken measures to limit the debate today to one single hour in total and with Lord Freud having previously re-amended the Lord’s amendments late at night after peers had gone home, my money is on the latter.

Here are the proposed amendments for today: Consideration of Lords Message – Welfare Reform Bill

Update: I received an email at 11:56 which carries another development. In addition to limiting the debate to a maximum of one hour the government have now grouped together all of the amendments and objections today into one vote. [PDF]

21 FEBRUARY 2012
Consideration of Lords Message
Government motion to disagree with Lords Amendments 3B and 26B + Government motion not to insist on Amendment 19A and to agree with Lords Amendments 17B to 17D and 19B + Government motion to agree with Lords Amendment 73BA

[1 hour after commencement.

21 February 2012

By Order of the Speaker

Invisible Invincible – Pod Delusion report

My report from the Invisible Invincible protest is now on The Pod Delusion podcast. Unfortunately it had to be cut by quite a lot to fit the available space, but you can read my original text below. It is largely based on a previous blog post with some added explanation.

My report starts at 15:17 in to the podcast. An MP3 file is available for download via The Pod Delusion website.

Continue reading “Invisible Invincible – Pod Delusion report”

Welfare Reform bill – email to my MP

This is the email that I have just sent to my MP ahead of the Welfare Reform Bill activity in parliament this week.

Dear Mr Luff,

I am writing to you once again about the welfare reform bill, which as I am sure you know will return to the commons on Wednesday.

I have received your previous letter dated 11th January 2012 and I am sorry to say I feel that your response was inadequate. In that letter you assured me that the the changes to DLA are the result of one of the biggest consultation ever carried out by the Department of Work and Pensions; however I must inform you that the report which I sent to you and asked you to read proved without a doubt that the government had not only ignored the results of that consultation, but had completely lied about the results in order to claim support where there was none.

You may be aware of a protest that took place at Oxford Circus in London this Saturday just passed. I was one of the people involved in that protest and as a result I have been interviewed by LBC, The Guardian, The Times, The Sunday Times, and many more. I was interviewed live as the top story on BBC London Radio news. I can safely say that there is a lot of interest in our objections to this bill and that the people affected do NOT trust either Iain Duncan Smith or your government. If you care to look I have included links to many of the news stories on my own blog, a link to which is at the end of this email.

I have many objections to the Welfare Reform Bill. By the government’s own admission, the change to PIP will remove support from a great many people. The cumulative effects of this change, and other proposed changes, will be to leave people dependent on more expensive and more acute services. In the end this will cost the government far more than is saved, and will lead to people moving out of communities and back into care homes and institutions.

There are a great many other things wrong with the Bill but what is even more concerning is that way that the government has lied – and I use that strong word quite deliberately – and misled the public to promote their position. They have ridden on the back of scrounger rhetoric from the tabloids, rhetoric which Anne Begg of the Work and Pensions select committee said was being fueled by careless press releases from the DWP. I would go further and suggest that the DWP and the ministers involved are deliberately providing incomplete and out-of-context information to provoke these headlines such as “75% are faking” and other similar attacks.

In short, I do not trust the government, I believe the welfare reform bill to be an irresponsible, mean, penny-pinching and harmful piece of legislation that was drafted without thought or care for the evidence of its impact. I urge you to pause this legislation and review its impact, or at the very least, do not overturn some of the meagre efforts that the Lords have made to mitigate some of its worse effects.

Yours Sincerely,


Welfare Reform Bill media links 17/01/2012

This list will be updated through the day. Please send me any links to relevant radio and TV that I haven’t got. Twitter @latentexistence or email latentexistence at gmail.com.

The House of Lords will meet from 2:30pm today and you can view it on the Parliament TV website.

BBC Radio Merseyside

Kaliya Franklin spoke to Radio Merseyside at 7:40 this morning. Listen on iPlayer. (Jump to 1:40 in.)

Radio 4

Home Affair editor Mark Easton outlines the history of the allowance. And Minister for Disabled People Maria Miller and Lord Colin Low, president of the Disability Alliance, debate opposition to proposed changes.

Welfare reform “rushed through” (mp3)


Radio 5

The Victoria Derbyshire show on Radio 5 discussing the Welfare Reform Bill on the 17th January 2012. With Baroness Tanni Grey-Thompson, Kaliya Frankilin, Louise Bolotin, Jane Young and Minster for disabled people, Maria Miller.

Radio 4 World At One

Sue Marsh talking about Welfare Reform on Radio 4 World At One


Sue Marsh on BBC News Channel this afternoon

Baroness Tanni Grey-Thompson interviewed by BBC News

Channel 4 News


Print media and web links are listed at all big ideas start small.

The #spartacusreport is on the @PodDelusion podcast

The piece below was written for the Pod Delusion podcast. You can listen starting at 9:36. You can download an MP3 or subscribe on the Pod Delusion website.

This is the full text of my report.

On Monday a report on the welfare reform bill was released, put together under the leadership of Sue Marsh and Kaliya Franklin of The Broken of Britain, and with support from countless sick and disabled people. It has already received support from such names as John Prescott, Caroline Lucas, John McDonnell, Stephen Fry and Tim Minchin. The report, titled Responsible Reform and referred to on the internet as the Spartacus Report, used a freedom of information request to obtain some five hundred responses made to the government consultation on the reform of Disability Living Allowance.

The report is unique in that it was entirely researched, written and funded by disabled people. Funds to enable this report to be produced and to be printed and delivered to MPs and peers were raised through donations from sick and disabled people contacted through social media. They raised more than three thousand pounds. Volunteers were found to contact their MPs to discuss the report, and thousands more helped to promote the report on social media and in the physical world. Press releases were sent out and the authors of the report talked to journalists. Before I tell you what the report found I would like to first tell you what this cost some of the people involved.

First Dr Campbell, who wrote a large part of the report. This is what she said:

I read and recorded the data for the Spartacus report on my daybed.

I wrote the first half of my section of the Spartacus report on my daybed.

I became more and more sick as I wrote it and by that stage became virtually unable to leave my bedroom. My painkillers were now at maximum dose.

I wrote the third quarter of my section of the Spartacus report from my bed.

By this stage I was only able to work for a quarter of an hour at a time and then had to sleep for the rest of the hour.

I wrote the rest of my section of the Spartacus report in bed as and when I could, working through the night as the pain now meant I couldn’t sleep anyway. I no longer left my bedroom.

After sending the report to Sue I spent 5 whole days in bed, only leaving it to drag myself to the loo. I only started to sleep again on day 3 when the pain started to abate.

When the spartacus campaign was launched I tweeted, emailed and facebooked from my daybed. By early evening (6pm) I had to retire to my bedroom.

On day 2 I was bedbound and unable to leave my bedroom. I tweeted etc from my bed. Painkillers once again to max.

Today, still confined to bed.

Sue Marsh described her effort like this:

I pushed myself to the absolute limits and each time I did, I had to go to bed or be threatened with hospital.

I did the first two weeks of #spartacusreport from bed, barely able to get myself a drink.

Then, when I realised what I’d taken on, I gave my life to it. I worked from 6am til midnight, I didn’t wash any clothes or play with my children for 6 weeks, I didn’t cook, I didn’t appeal my DLA decision, I didn’t sort my housing benefit out, I didn’t go out, I didn’t do anything but work on #sartacusreport.

Immense thank yous to my Mum, Husband and children for making it even vaguely possible.

I had three chest infection, a crohn’s flare a fractured rib, two atrial fibrillations and I didn’t even tell anyone about the last thing cos I knew they’d make me stop.

By the end of the second day of pushing this report several of the people involved were so ill that they were hospitalised. Kaliya Franklin recorded a video in which she told us about these events but she was unable to speak above a whisper and was very close to hospitalisation herself.

So now you know just what went into this report, but what did the report actually find?

The report found that the vast majority of responses to the consultation were against the introduction of Personal Independence Payments to replace DLA. While most people accept that some reform of Disability Living Allowance is necessary, there is widespread agreement in the responses that Personal Independence Payments are not it. Of the five hundred responses to the consultation, 74% were against the proposals for PIP, and 19% had serious reservations. A mere 7% supported the proposals.

One very unexpected find is that the Conservative mayor of London, Boris Johnson submitted a response to the consultation in which he slammed the proposed reforms and even questioned the motivation of the government. He concluded with:

“While some reform may be necessary and some proposals are positive in terms of simplifying the benefit and reducing bureaucracy, the Mayor is concerned that if the focus of this reform is solely efficiency driven government, may fail to ensure that the needs of disabled people are adequately met and many will suffer additional hardship and isolation.”

This story was unexpected enough that it made it into the Guardian, the Telegraph, the Mirror, and even the Daily Mail.

So the first find is that despite government claims to the contrary, the consultation was overwhelmingly against the proposed reforms. This hasn’t stopped the government continuing to claim support.

The second important find is that the consultation, which was two weeks shorter than required by the governments own code of practice and took place over the Christmas break for good measure, ended two days AFTER the welfare reform bill was written and presented to parliament. The bill clearly could not have been written based on evidence submitted during the consultation even if it were written by hummingbirds on speed.

This is not the only problem with the behaviour of the government. They have consistently claimed that there has been a 30% rise in claims for DLA, but  it is actually 13%. The government has even admitted that this figure is “distorted” but continues to claim 30% which is the figure that MPs and peers have been told and have used in Parliamentary debates. The government has failed to note that much of the 13% rise in claims for DLA is due to an increase in diagnosis of mental health problems and learning disabilities. This is likely to reflect improved health care rather than nefarious claims for DLA.

The report notes that DLA is not an out of work benefit but is a cost-saving benefit. DLA is paid to cover some of the extra costs incurred when living with an illness or disability, and is paid regardless of income. By covering those costs DLA allows independence and freedom to people which they would not otherwise have, and if taken from them would cause them to fall back on other health care and welfare services instead. Many people are able to work only because DLA provides them with the ability to travel or make expensive adaptions, and without DLA will be forced to claim other benefits instead. As such DLA actually saves money by preventing the need for much greater expenditure elsewhere.

One expectation of the welfare reform bill is a 20% cut in the budget for welfare costs. One of the ways in which they intend to accomplish this is  that the new personal independence payments would introduce frequent testing much like the work capability assessment used for Employment and Support Allowance. The report notes that this testing is pointless in a great many cases where disability is permanent and may be degenerative, which given how hard it is to get DLA, is a lot of cases. It seems to me that the purpose of introducing such tests is to pander to tabloids and their readers rather than common sense. The policy defies logic enough that in April last year Ollie Flitcroft, a Conservative councillor for Barrow Borough Council and himself a wheelchair user, resigned in protest. Even the Daily Mail has featured an article favourable to the spartacus report.

There were several other important point in the report but I will leave these for you to read for yourself. The link to the report is at the end of this article.

The spartacus report found that the government has comprehensively mislead parliament and the public about the facts behind these reforms. The report says “We argue that reform must be measured, responsible and transparent, based on available evidence and designed with disabled people at the very heart of decision-making. Currently, we do not believe this to be the case.”

Since the release of the spartacus report and all of the campaigning that has gone with it, the debate of the welfare reform bill has resumed in the house of lords. Having already been through detailed examination at the committee stage but having most amendments blocked by conservative peers, the bill is now the subject of a flurry of amendments at the report stage through January. On Wednesday heated debate in the Lords surrounded amendments to the government’s key policies on Employment and Support Allowance. Lord Patel and Lady Meacher argued the case for their amendments from a very strong position which Lord Freud was unable to counter. In an embarassing turn for the government, three amendments were passed by substantial majorities which overturned plans to time-limit contribution based ESA to one year, exempted cancer patients from time limits all together, and restored access to ESA for children with severe disabilities so that they would be ensured the support that they need in the future.

Despite this defeat, which is perhaps the largest defeat for the government since the election, this fight is by no means over. The report stage continues in the house of Lords through January, and after the third reading it must return to the house of commons for approval of the amendments. I still believe that the whole bill is flawed, and I and countless other disabled people call for the welfare reform bill to be put on hold and reconsidered in light of proper evidence.

Responsible Reform – the report in full (PDF)

Petition to scrap the anti-satire broadcast regulations

There is now a petition to scrap the broadcast regulations which prohibit the use of footage of parliament from being used in a satirical TV programme. I think that this regulation is an absurd throwback that must be repealed. I have already expressed my views on this in two previous blog posts – Mocking Parliament and Daily Show response to UK ban of comedy including footage of Parliament

Please sign the petition at the HM Government e-petition website – Scrap The Anti-Satire Broadcast Regulations



Mocking Parliament

Quick Version: The Daily Show Global Edition can’t be shown in the UK this week, because it contains footage from parliament in the context of humour and satire. (Long version at New Statesman.)


We can’t mock parliament? What happened to free speech? You know, that human right that has to apply to everybody or it doesn’t work?

Well screw that. Here’s the stuff that can’t be shown. I am not sure if the rules on this apply to internet video and blogs or not, but if it breaks the law, so be it.

And just in case you haven’t seen it, this is my video that might break the law too.

Everything that happened today in 30 seconds

In the absence of anything meaningful from today’s select committee investigations into hacking and corruption, I made this.


This isn’t really everything from the day though; make sure that you are aware of what the government did today to schools


and the NHS