Invisible Invincible: my day of protest

It begins - the start of the protest

It begins - the start of the protest

Many of you reading will already know what I was doing on Saturday, but I want to get this written up anyway. So here goes.

My alarm went off at 6:30am. Being a chronic insomniac, it was pure luck that I had actually got to sleep by about 2am and so had had some sleep before hand. Strangely I find it easier to function after four hours sleep than after seven, if not for very long, and so I forced down a double dose of painkillers and coffee and managed to get washed and dressed – no small feat for me at any time of day. The I bundled myself into my powerchair and we were off.

First stop was a bus into Evesham. Karen and I walked/rolled to the bus stop and waited in the cold. Eventually the bus arrived (We knew it would be wheelchair accessible this time because Karen had phoned to check the day before) and we travelled twenty minutes or so into town. Then we had to go on half a mile from the bus station to the train station. I had pre-booked assistance to board the train but not tickets, so we went via the ticket office to buy the tickets. £74 of tickets, which went on credit. Protest is costly, in more ways than one. Trains to London actually depart from the other side of the platforms and my chair wasn’t going to go over the footbridge and so we left the ticket office and went around to the other side via the main road, which took a few minutes. After a few minutes wait in the very cold waiting room (people in wheelchairs are told to arrive half an hour before the train is due, as well as to book 24 hours in advance) the train arrived. Unfortunately when I found the car which I had been booked into, it turned out to be beyond the end of platform. The train manager looked a bit harried as we walked all the way to the other end of the train so that he could put us in first class where there was another wheelchair space. The next hurdle was that there was hardly any room to manoeuvre on the way in to the train and I got stuck trying to get past the luggage space. I had to get out of the chair and the train manager actually lifted it clear of the obstruction, all 90KG of it. Once we were underway I settled down with a coffee and tried to eat the bacon roll which we had brought with us, and I wrote a blog post to explain why I was protesting.

In London I got off the train after a brief delay while the ramp was taken to the wrong end of the train, and we made our way out to catch a bus to our meetup location. I must say that I am very impressed with the wheelchair ramps on London buses. There is a button next to the middle door to alert the driver of a wheelchair, and then after passengers have disembarked the doors close again while the motorised ramp is lowered. Then the doors open and allow the wheelchair to board, with plenty of space to get to the designated wheelchair spot. I wish these buses were everywhere.

We got to the McDonalds where we were meeting far earlier than we needed to but we started to bump into other people arriving for the protest anyway. I was pleased to recognise someone that I had seen at a march in Birmingham the previous June, and even more pleased when I realised that it was in fact @pseudodeviant who I knew from Twitter. It turns out that we had met, and had been talking to each other online but not realised who we were! We were approached by John Domokos, a video journalist from The Guardian who interviewed us both about our reasons for protesting. The first of many interviews I would do that day. After a few minutes I met and talked to one of the organisers of our protest about our plan. The number of wheelchairs and other disabled people hanging around outside was making us a bit conspicuous so he suggested I go to meet up with another group a short distance up the road. I was really please to find people from UK Uncut waiting there to assist us, including some people that I had been talking to over the internet for more than a year but had never met. There was much chatting and smiling.

Then just before twelve we all moved off towards Oxford Circus. Volunteers from UK Uncut waited for the lights to go red and then ran across the Regent Street crossing with a chain, locking it at both ends. A line of people disabled people followed rapidly and took up their places along the chain. I was near the back of the line as I was waiting for Karen to return with food for me (I’m diabetic and had realised that I would miss lunch) so I rolled into place right at the end of the line across Regent Street, actually still on the pavement. We all locked on to the chain with D-locks and a cheer went up. We had done it!

Video: arrival

Interview with LBC. Photo by Richard of Cornwall DPAC
Interview with LBC. Photo copyright Richard, Cornwall DPAC

After that events were hectic and a bit of a blur to me. Being on the end of the line I was the prime target for hoards of journalists. I did interviews with more than I can remember. I did pieces to camera, for podcasts and radio, talked to journalists scribbling notes, to people from the BBC, The Guardian, The Times, LBC, to more than one team from each of those. I talked constantly for two hours, and my head was spinning. I did a live piece for the One O’Clock news on BBC London radio.  The noise of the crowd and the samba band was quite overwhelming and it was only adrenaline from the audacity of what we were doing that kept me going. In between the journalists I met people who I had been talking to on Twitter for months. A great many people seemed to recognise me, which frankly I found quite scary! I also was very pleased to meet Laurie Penny, if only for thirty seconds or so. Throughout the protest people from UK Uncut and others constantly checked if we were OK, offered tea and coffee, and kept us updated with what the police were saying.

I was quite impressed with the police, the Met were calm and pleasant and smiling, which was unexpected. They did pull up with sirens blaring, but then who doesn’t like a good excuse for blues and twos? Two police vans stopped in front of the line and blocked us from the rest of the junction and a row of police lined up in front of the vans facing us. Police did try to take down a banner that was being held across the Tube entrance, and there was a Met cameraman carefully videoing us all, no doubt for the database of protesters that they deny keeping. After about an hour the police made an announcement. I haven’t got a clue what they said, because it was completely incomprehensible, even without the sign-language interpreter that one of the other protesters asked for!

As we neared half past one it seems that the police were getting a little impatient. They informed some of our group that they would tolerate us if we moved aside to only block one side of the road, otherwise they would “take appropriate action.” I almost wish I could have seen what that appropriate action was, because I don’t think the police had any idea. No doubt they had disturbing visions of what the many journalists there would say about police dragging away people in wheelchairs, blind people, people on crutches. And it’s not as though their vans had wheelchair lifts or spaces.

By the time the police had made their feelings on this matter known many of us were quite cold and uncomfortable. This protest was extremely draining for most of the people involved. Although many of us wanted to stay until forced to move, the fact is that most of us could not, and so we all agreed that we would leave at 2pm. In the end it was really chaotic. We all unlocked from the chain and a speech was made, but then no one quite knew which way we were going. Some people had mentioned adjourning to a pub to get warmth and food but as no one knew which one that didn’t happen quickly. We actually ended up milling around in the road and chatting until the police started to look quite stern at about quarter past two.

Oxford Street slow walk
Slow walk down Oxford Street

On the way to the pub there wasn’t room on the pavement for all the wheelchairs, so they ended up in the road. We were in a walking pace procession right down the road in Oxford Street. Eventually it became possible to get on to the pavement but some stayed in the road and a few minutes later some police vans came speeding down the wrong side of the road and then crept along next to the crowd. Eventually everyone reached a pub and tried to cram inside, although it wasn’t possible for everyone in wheelchairs to get in. Several other people and I ended up in a pub next door for an hour or so before moving across to the first pub were we were finally able to get some food and seats.

Police waiting outside our pub
Police waiting outside our pub - were they lonely?

We had a lovely time in the pub and I met yet more people who I previously knew only through Twitter. I stayed far too long for my own health but I had already condemned myself to days in bed in pain and not moving and this was a very rare opportunity to meet people and so I pushed through with help from copious painkillers.

Eventually Karen and I left the pub and returned to Paddington station. The train back to Evesham is only every two hours and we had more than an hour and a half to wait. We passed the time sitting in a coffee shop at the station and I began to zone out from exhaustion and the strong painkillers that I take. At this point the crowds and the noise of the station seemed like distant things and I was floating in a haze of opiates and tiredness.

When we went to find our pre-booked assistance for boarding half an hour before the train was due to leave the manager told us that Evesham station was unmanned after lunchtime, which we already knew, but he also didn’t think there would be any staff on the train who could place the wheelchair ramp for me instead of station staff. This caused me to panic a bit but the station manager called another manager who called the train driver who thought there might be staff on board after all. I went to board the train, which is where we discovered that the train did not have a wheelchair space at all. I eventually ended up blocking the door area with my wheelchair for the whole journey. I am quite surprised that the assistance booking line were not aware of the situation with the station staff, the train staff or the type of train. I was really uncomfortable so I moved to a seat next to Karen, and after Oxford I moved to an empty double seat where I tried to stretch out to relieve some of the pain. I crashed completely at that point with horrific burning and aching pain in spite of my double dose of painkillers. I was in so much pain that I was crying, and trying to hide it from the other passengers.

When our train arrived at Evesham sometime around midnight I had passed out from pain and exhaustion. Karen tried to get me to move back to my powerchair but was unable to wake me up. My memory of this is hazy but I know that I did stir a little and try to stand but could not, and I ended up on the floor of the train and then slumped across the arm of my wheelchair. I understand that a stranger on the train helped Karen to lift and drag me into my chair. Unfortunately when we arrived the ticket inspector could not unlock the ramp at the station. She had been given the code for the lock but it did not work. My family had come to meet me at the station to drive us home and so I was carried off the train into a manual wheelchair by my brother, mother and wife, apparently dropped near the edge of the platform on the way. They also carried my extremely heavy powerchair off the train. Between them my brother and my wife got me into the car and then from the car to my bed, although I was almost completely unable to move.

And so that is where we are now. I am still in bed at the end of Monday, 48 hours later. I have managed to visit the toilet a couple of times, and I eventually managed to change my clothes this afternoon, but I’m in a lot of pain and I can’t really do much. This is all completely in line with what I expected and I am doubtful if I will be spending any time out of bed before next weekend. This is what the protest cost me, what I knew it would cost me. All I can do is hope that the politicians notice and reconsider their policies.

News items

This video is my personal update from Sunday afternoon.

This is my live interview with BBC London radio – 1pm 28/01/2012

Interview live on BBC London radio (mp3)

 

Here is my interview with BBC News

Here is the Guardian piece and video which includes my interview

You can find more links to news stories about our protest in this previous blog post Welfare Reform Bill protest news links

Author: Latentexistence

The world is broken and I can't fix it because I am broken. I can, however, rant about it all and this is where I do that when I can get my thoughts together. Most of the time you'll find my words on Twitter rather than here though. I sometimes write for Where's The Benefit too.

2 thoughts on “Invisible Invincible: my day of protest”

  1. nice one Steve:) it takes courage and heart to stand up against any government be it labour or conservative. lets hope it hammers home the fact that disabled people, are not living a lottery winners lifestyle. wish i could have been there with you.

    viva the revolution:)

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