Government backs down on some retesting for sickness benefits

Government backdown won’t apply to all but is an opening

The Work Capability Assessment (WCA) is highly damaging to those of us who have to go through it. Despite this, both main parties have consistently denied that there is any problem, and claimed that the WCA is necessary to weed out scroungers. That might be about to change.

Firstly, Labour announced at their conference that they would scrap the WCA altogether. This doesn’t mean much right now since they are not in power, but it is a major turnaround for a party that introduced the WCA in the first place and has refused to even oppose most benefit cuts in the last few years. Jeremy Corbyn called the WCA degrading. Debbie Abrahams acknowledged that it makes people feel worthless and dehumanised.

It’s not all good, since they still refuse to oppose benefit sanctions, and used the same old language about work being the goal for everyone, but it is a start.

Secondly, Damian Green, Tory Secretary of Work and Pensions, has told the media that the government will stop repeatedly retesting people who aren’t going to improve.

“If someone has a disease which can only get worse then it doesn’t make sense to ask them to turn up for repeated appointments. If their condition is not going to improve, it is not right to ask them to be tested time after time. So we will stop it.”

This is a huge reversal of policy. Continuous retesting was always the point of Employment Support Allowance (ESA) although there have never been enough resources to apply that to everyone.

Many people are celebrating this. However, there are big questions as the government haven’t specified any details. I’m not sure they even know yet. Reports imply that the exemption from retesting will apply to people with specific illnesses that are known to only deteriorate. If that is the case, then many people who have illnesses that are just as bad as those on the list but are not recognised as such, will miss out. So will people who have not yet been diagnosed, and that can mean people who are sick for years – or decades – before they find out the cause.

The more logical policy would be to apply this exemption to everyone who is in the Support Group, since this category is meant to contain people who have no prospect of improvement. In practice the Support Group doesn’t work like that, and people who will never improve are frequently placed in the Work Related Activity Group instead, thanks to DWP efforts to deny them support in order to keep costs down. If the exemption were to apply to the Support Group only then it would still be unfair to all those improperly placed in the WRAG.

Whether the Government decides who qualifies based on diagnosis, or based on support group, it will still be unfair. However, I do see this announcement as a big win. A Tory government minister said “constant reassessment is pointless” and “does increase their stress and anxiety levels” “causes financial insecurity” to describe repeated work capability assessments. That is a huge admission for the Tories, or even for Labour.

We can use this. We can attack the inconsistencies in the government’s argument. We can point out that the Work Capability Assessment is damaging to everyone. We can show that their descriptions apply to Personal Independence Payments too, even though they’ve spent six years attacking PIP’s predecessor, DLA as “abandoning” people so as to justify welfare reform and repeated reassessments. This isn’t an unqualified victory and won’t necessarily improve things for that many people (perhaps including myself) but this is a major event in the struggle against welfare cuts of the last few years.

No more repeat Work Capability Assessments until further notice

Some huge news has emerged today after a Freedom Of Information request by the Benefits and Work website.

It appears that the DWP have suspended all repeat Work Capability Assessments with Atos. This means that those who currently receive Employment Support Allowance and are in the Support Group or the Work-Related Activity Group will not be called back for repeat assessment unless the DWP are informed that their health has changed. This appears to be a move to clear the backlog of those in the Assessment Phase of ESA who are waiting for Atos to call them in for a WCA. It is unclear how this might affect the migration for those who still receive Incapacity Benefit. According to Benefits and Work the DWP memo states:

“The number of cases currently with Atos Healthcare has grown. A decision has therefore been taken to control the referral of repeat work capability assessments. Therefore, with effect from 20 January 2014, further routine repeat assessments referrals to Atos will be deferred until further notice.

“Controlling the volume of repeat Work Capability Assessments should help us to reduce delays for new claimants and those that have already been referred.”

Benefits and Work also claim that the DWP did not intend to inform either MPs or claimants. The uncertainty over the timing and outcome of the WCA is a huge problem for most people who rely on ESA and the knowledge that they will be left alone in the near future would be a great help so it is a further sign of cruelty that the DWP don’t care enough to inform anyone.

This decision to suspend repeat assessments sheds new light on the recent announcement by Atos that they are seeking to get out of the contract for WCAs early anyway and on the ongoing battle between Atos and the DWP to place the blame for the failure of the entire scheme.

Dr Greg Wood put some speculation into the thinking behind this decision on his blog in the form of a fictional memo – Work Test Whistleblower: A Note For The Minister?

Source: Benefits and Work: All repeat WCA medicals to be stopped

Related:

Atos want to end DWP Work Capability Assessment contract

The problem with the Work Capability Assessment goes far deeper than Atos

 

Whistleblower says Atos Work Capability Assessments are unfair

A doctor who worked for Atos carrying out Work Capability Assessments has resigned and has told the BBC that the assessments are unfair. He says that pressure was put on Atos staff to change the outcome of the reports.

But Dr Wood has criticised some of the tests which he says contain “dubious concepts and shaky reasoning”.

He claims assessors are told that if a claimant can walk from the kitchen to the sitting room, it proves they can walk 200m (650ft); and if a person can dress themselves once during the day that is proof they have enough concentration and motivation to hold down a job.

He insists these rules are not published in handbooks and guides, instead they are simply spoken about in training sessions.

Dr Wood, who was given special responsibility to champion mental health at Atos, said: “I was instructed to change my reports, to reduce the number of points that might be awarded to the claimants. I felt that was wrong professionally and ethically.

Watch the BBC Six O’Clock News report:

BBC News talked about this some more an hour later:

Tom Greatrex MP has written to David Cameron to urge him to order an investigation.

BBC News: Disability benefit assessments ‘unfair’, says ex-worker

The Guardian: Atos benefit claimants face biased medical assessments, doctor alleges

Benefit Scrounging Scum – Q: When is a target not a target? A: When its a statistical norm

Sue Marsh – What’s the state of ESA?

Black Monday: welfare reforms take effect

Guardian front page 2013-04-01

The Guardian – Welfare reforms and coalition cuts: The day Britain changes

Today, 1st April 2013, is the day when many changes to welfare in the UK take effect. I will add various reports and interviews here as I record them.

Sue Marsh on BBC London at 9am:

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Sue blogs at Diary of a Benefit Scrounger

Dame Tanni Grey-Thompson on Sky News Sunrise at 9:10am

Iain Duncan Smith on The Today Programme, Radio 4 at 8:30am

David Bennett explained to The Today Programme how he works 60 – 70 hour weeks but is still needs benefits to survive. He asked Iain Duncan Smith if he could survive on £53 per week.

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Newspaper Front Pages

 

Telling the full story of benefit changes

Mainstream media has shown very little interest in covering the coming changes to benefits and the impact that this will have. There is an occasional segment on TV news and a few more newspaper articles but even after two years of campaigning few people realise what is actually happening. The common reaction is disbelief and accusations of scaremongering and exaggeration.

My idea is to create an hour long documentary film using all the professional tricks to make it compelling and informative so that it conveys the full impact of the changes hitting people who live on benefits, whether unemployed, disabled or low-income. It would use personal stories, graphics, commentary, interviews and music to tell the story. The film does not have to convey a political message, only the reality of the changes. Any positive changes that can be found should be included too. I believe that even if made as unbiased as possible the film will be devastating in its message.

To get mainstream appeal the film could be narrated by and feature interviews with celebrities, with well-known paralympians potentially being the best choice but others too.

While a spot on television would be the ideal, these days a film on YouTube can get millions of views – potentially more than would see on TV. An online campaign using very short clips and hashtags could attract viewers. To raise the chances of it being seen on TV a ten minute version could be made using materials from the full version and sent to TV stations everywhere.

I’ve noted some of the steps that I think will be required. They’re not necessarily in any particular order.

  • Find a suitable name and some introductory branding
  • Create a website for the film
  • Crowdsource a list of all benefit cuts, eligibility reductions, care and service cuts and the impact of all this.
  • Start an awareness campaign on social media to get people involved.
  • Ask people to submit short clips through Vine and YouTube telling their stories and what they expect to happen. Clips can be recorded with smartphones or webcams. Gather these clips under a hashtag on twitter.
  • Raise funds through donations  for travelling to record interviews.
  • Interested parties meet to discuss content. Further meetings where appropriate in later steps.
  • Record interviews with celebs.
  • Follow up personal stories for better recordings.
  • Create graphics and animations to explain the changes.
  • Edit together a draft version of the film.
  • Record narration of the changes.
  • Create transcripts and subtitles.
  • Meet up physically and make a final version of the film.

This is all very much at the ideas stage, please comment with your views, suggestions, offers of help etc. Lets make this happen!

Letter to my MP on new ESA regulations #esaSOS

As promised, although a little late due to lack of spoons, here is the email that I sent to my MP regarding the new ESA regulations. Feel free to take any text from this for your own use.

Dear Mr Luff,

I would like to apologise for the swearing incident which led you to block me on Twitter. As I am sure you must realise by now I suffer from mood swings and anger triggered by chronic pain and the painkillers which I take for it – something which will be inadmissible at my next Work Capability Assessment.

I have been shocked to read about new ESA regulations which will come into force on the 28th of January 2013 and I am writing to express my strong opposition to them. I appreciate that not much can be done at this late stage but this is in no small part due to the regulations coming into force less than six weeks after their announcement.

The new regulations allow a decision to be made about benefits based purely on the supposed difference that a suggested change, therapy, aid or medicine would make. This is already the case some of the time but will be much expanded in the new regulations. The new regulations do not require the Atos Health Care Professional (HCP) to discuss the suggested change with the benefit claimant before a decision is made by the DWP. It is of vital importance that any medicine, mobility aid or prosthetic or other change that an Atos HCP might feel would improve the claimant’s chances of working should be signed off by the patients own specialist doctors and by the claimant themselves before any decision. The Atos HCP is not the claimant’s doctor, (indeed, they are usually not a doctor at all) is not knowledgeable of the claimant’s condition, and the Work Capability Assessment, by the DWP’s own admission, is not a medical assessment.

There are numerous reasons why the change that the Atos HCP suggests might not be appropriate. It is quite possible that the change might not be available in that area or at all or might involve a very long waiting list. In Worcestershire, for example, wheelchairs are not available at all to people who can stagger around their own home. Prosthetic limbs are expensive everywhere. In many cases a person may be advised not to use a wheelchair, prosthetic limb or other aid because to do so will hasten the progression of their disease. A claimant may well have tried or considered a particular change but ruled it out because of negative side effects.

Even if the change were considered by doctors and the patient, there is the huge issue of consent. This change could compel people to take up a particular medical treatment through pressure from removal of their benefits and several legal experts have suggested that this could well breach their human rights. To push ahead with this could be extremely costly for the DWP when legal cases are brought.

Even worse than the above change, the new regulations will strictly separate the impact of mental health conditions and physical health conditions. This is an absurd change which ignores the reality of illness. Many medications for mental health problems cause physical problems, and many pain drugs cause cognitive problems. Impairments caused by a problem in the other category must be taken into account.

I do hope that you will agree with me that these regulations are a serious problem and will express your opposition to them.

Sincerely,

Steven Sumpter.

Sneaky Work Capability Assessment rules judge you fit for work based on imaginary help

There are new regulations for Employment Support Allowance about to come into force on the 28th of January. These regulations were proposed only six weeks before they will come into force, leaving very little time for the impact to be considered.

Worse, these regulations make drastic changes to the assumptions made during the assessment that will result in even more people being refused sickness benefits or told to take part in work-related activity.

ESA SOS! Refusing help
Doc Hackenbush explains the change (Click to enlarge)

The two big changes are:

An assessor can consider what mobility aids, equipment, medical treatments or medicines might help the claimant return to work, and then, without consulting them as to whether the change is suitable, they can judge them fit for work or for work related activity based on them making that change. This completely ignores things like side-effects of medication, suitability of adaptions and mobility aids, or even if such help is available to the individual. This could already happen to some extent, such as with wheelchairs, but will now apply to a far wider range of changes. This also raises the huge problem of medical treatment without consent, since refusing to take a drug that could help a person return to work, even for very good reasons, could lead to benefits being withdrawn.

The second huge change is to how the the assessment considers the relationship between mental and physical health conditions. Where previously any disability or restriction could be applied to any activity, whether it was caused by mental problems or physical problems. These new regulations will strictly separate the two such that one set of questions considers purely physical restrictions, and another set purely mental restrictions. You may be completely unable to perform a task due to mental illness, but be considered able to physically and therefore able to full stop. This equally applies to side effects of medicines. For medicines that treat mental health conditions, only the impact of side effects ON mental health will be considered. Crippling physical side effects caused by treatment for mental health will be completely ignored when deciding that a person can work.

These changes will pull the rug from under the feet (or wheels) of hundreds of thousands more people who are struggling to live, never mind to earn a wage. Make no mistake; whatever the intention of these changes, this is a cut in support.

What you can do

The clearest analysis of these changes that I have read is from Ekklesia. Briefing on ESA Regulations [Ekklesia] I recommend that you read this.

Please write to your MP urgently to oppose these new regulations. You can find and contact your email through Write to Them. My own communication with my MP will be available on this blog later today.

Please share this and other blogs about this subject on Twitter with the hashtag #esaSOS as well as on Facebook and anywhere else you think suitable. A tweet of your own will have far more impact than a retweet.

Please also add your signature to the War On Welfare petition to call for a cumulative impact assessment of this government’s welfare reforms.

Further Reading

DWP guidance on the changes: Memo DMG 1/13 [PDF]

The Employment and Support Allowance (Amendment) Regulations 2012 [legislation.gov.uk]

Diary of a benefit scrounger: ESA SOS

Thousands of disabled and sick people will be hit by new ESA/WCA changes [Ekklesia]

 

What’s the state of ESA?

This won’t be a short post, but it is a crucially important one.
I have never written about something on this blog that I couldn’t prove to be true. If I didn’t have evidence that I could show you online, I didn’t write about it.
I’ve had many conversations with Labour MPs or peers or journalists or managing directors or trade unions  that I couldn’t share, but each one added to my overall understanding of ESA (Employment Support Allowance)
Today though, I think it’s important that I try to lay out very clearly what I feel I “know” about ESA, WCAs, Atos, the DWP and the current political situation.
I’ve dismissed those I judged to be fools along the way, the way we all do every day as we decide to trust someone or not, to believe something or not. I’ve made my judgements from meeting people, from talking to them. I like to “see the whites of their eyes” when I can. I research people, I try to “know” them and what makes them tick.
I’ve judged evidence and analysis along the way and tried always to get as close to a truth I could prove as possible.
I’ve dug into the history of welfare reform where I could. I’ve tried to find out what was going on with Labour at the time, when were Atos brought in? What was Unum’s involvement, who designed ESA? Which DPOs and charities were involved?
At every stage, with every decision, every   speech, every article, I’ve tried to think of the people who read my blog. I’ve tried to ask what we need to change and why. How to change it. Who are the real enemies? Why? What methods of demanding change are effective?
 Of course, my judgements may not have been yours. I have absolutely no way of actually “knowing” if I was right or wrong, too naïve or too cynical, biased or balanced but the following summary is where I feel we are in my heart from everything I’ve read and everyone I’ve met.
There are so many things that so urgently need changing about ESA, forgive me if I forget any here. For every bullet point, the section in italics is my opinion on where we currently stand.
  •       Medical evidence from own GP or consultant rarely taken into account
One of the most shocking statistics disclosed about WCAs was that DWP decision makers only refer to medical evidence as well as the Atos decisions in 2% of cases. Harrington recommended that medical evidence should always be considered and there has been progress- 8% of decisions are now overturned by DWP decision makers, suggesting they are referring to medical evidence much more. This has not yet been rolled out everywhere, so we might hope to see the figures improve further. However, the ideal solution would be for decisions to be taken by an independent doctor, based on all the evidence available.
  •     Descriptors used to assess fitness to work are far too narrow and not based on real life. They discriminate against those with mental illness, long term chronic illness, learning difficulties and more.
No assessment can ever be fair or functional if the descriptors are wrong. ESA descriptors are so wrong, they need totally fundamental reform. I got the impression that something shifted in the early part of this year. Government suddenly decided to go ahead with a trial of alternative descriptors (you can see them here) that were much fairer and broader and more rooted in a real life test. Though far from perfect, I believe they would give much more realistic results and provide much more opportunity for HCPs to make informed decisions.

The timescales to test these new descriptors is very quick for government. They will be trialled alongside a panel of expert decision makers to see how accurate they are. This process will be run by civil servants and if they are a notable improvement on the current descriptors, government do say that they will be implemented. 

We can help make sure the new descriptors are fairly trialled and the results accurately reported by keeping an eye on the trial, communicating with the charities responsible for writing the new descriptors and making sure that this isn’t somehow quietly shelved while we’re not looking. However, if all went well, we might be looking at the introduction of the new descriptors by 2014.
  •          Disability assessment centres are not all accessible to disabled people, often with no parking (!?!)
This is something that Atos has pledged to change as soon as they can. Whether might choose to be sceptical, but they have said on their blog and elsewhere that they are committed to quickly making all centres fully accessible. 

We can make sure they do this by writing to them and saying how important it is, urging them not to delay and telling them your own stories of trying to access an inaccessible centre.
  •          The Support group is too narrow and far too difficult to get into.
Support group numbers have been steadily rising. Last year the government had to find an extra £1 billion due to paying more people than they had predicted going into the support group. The figures are still rising and suggest they will continue to rise as the Harrington changes are rolled out. Grayling has said that they are “intensely relaxed” about this rise in Support Group numbers if it means those in genuine need are getting help and certainly, there doesn’t seem to be any evidence of this rise being suppressed or restricted. 

Once the latest figures are adjusted to take account of appeal decisions, around 35% will end up in the Support Group, around  42% in the WRAG and 23% fit for work. This is a huge improvement on the shocking days of  new-claim only  ESA stats, where just 6% were going into the support group, 18% into the WRAG and a full 77% of claims not resulting in any award of ESA. 

There’s still a long way to go. I would argue that the support group should be bigger than the WRAG and that 23% is too many being found fit for work, but there really has been great improvement.
  •          Sanctions of any kind, but particularly time limiting bad health to one year, are inappropriate for people with serious illnesses or disabilities.
Sanctions and penalties are most beloved by this government despite no evidence at all, anywhere in the world that they work. They have totally refused to listen or compromise at all over this and I can’t see that they will. The public are currently very supportive of sanctions and mostly believe they should actually be tougher.

However, workfare, work providers and some of the reality of sanctions have taken a hit this year thanks to the work of people like Johnny Void and Boycott Workfare, with big companies experiencing a strong public backlash leading them and charities to pull out of workfare and other failing schemes. 

More to the point, the way the government has set up the “payment by results” scheme, means that small providers who tend to get good results are going to the wall while less targeted, less successful large companies are unable to hit the targets set. The reality is, most sanctions will either never be used, or will be quietly abandoned as the government realise they either cause too much embarrassment or the scheme collapses totally because none of the providers are getting paid.
  •          Decisions take far too long. Appealing a wrong decision can take well over a year.
This is only getting worse with backlogs growing, targets for re-assessment falling further behind and tribunals taking longer. Soon, as the government realise that it is, in fact, impossible to actually assess 2 million people and keep on assessing them indefinitely. They cannot achieve accurate assessment rates assessing 11,000 people a week. There simply aren’t the HCPs to do the job. 

Assessment rates need to fall by around half and government must accept that the whole process will take longer then they predicted. When assessment rates DO fall, the appeal rate also falls drastically as shown in Kettering who have implemented all of the Harrington changes enthusiastically. Getting the decision right first time, by taking the necessary time with each claimant saves the taxpayer millions and the person being assessed trauma and unnecessary waits for tribunals etc.

There is strong anecdotal evidence that Atos and the DWP are now pre-assessing many as unable to work without calling them for assessment. This is exactly what we always said they would have to do. It is how the original IB system worked and though the government are clinging on to the rhetoric, they are realising we were right all along and there really IS no point in assessing people who will never get better and who clearly will never work. This is a big win, but you’re unlikely to hear about it.·         Healthcare professionals (HCPs) used by Atos to assess disability do not have to be doctors and do not need to have any specialism or prior understanding of the condition the claimant suffers from to make a decision.

Atos have pledged “mental health champions”, up and down the country, claiming that they will make the assessments fairer for those suffering from mental illness. This is welcome, but unless the assessor has some knowledge of the conditions they are assessing they cannot possibly make an accurate decision. Atos might consider other teams of expert assessor for other conditions. Though it might mean claimants travelling further to be assessed, if specialist teams were more accurate it would be a small price to pay. All HCPs should have a working knowledge of either general medicine or the speciality of the person they are assessing.
  •         Reports written by HCPs are inaccurate; often bearing no resemblance to what the claimant reports was actually said.
This still seems to be shockingly common. The DWP have said in principle that all assessments can be recorded, but in reality are blocking the process. Until someone being assessed for ESA is afforded the same basic rights as a criminal, and assessments are recorded, claimants cannot make sure this doesn’t happen. 

As both Atos and the DWP have said that assessments can be recorded and have pledged to get working recording machines into assessment centres, we can make sure people get accurate HCP reports by keeping the pressure on the DWP to provide these machines in every centre. This is one area that I know is under great pressure legally too. Having the law on our side can only help.
  •          Questions are misleading, seemingly designed to “catch people out”
A longer assessment using the improved descriptors, should make this less likely, but there is a culture of suspicion between state and claimant that must be talked from the roots up. All the time ESA is only designed to catch the cheats, it will never serve those in genuine need.
  •         Mail containing highly personal and sensitive information on forms is opened and sorted by a third party.
Mails used to be opened by the Royal Mail, sorted and only then sent on to Atos. Once the DWP finally accepted that the practise was commonplace, they have now pledged to stop it. We can make sure they do by keeping the pressure on.
  •          Correspondence sent to the claimant is threatening and frightening.
This is one area where Atos have seemed very keen to make improvements. They have redesigned their website to make information more easily available, less frightening and more sensitive. They now have a patient charter and say that they will work hard to make the whole claimant experience more customer focussed and compassionate. 

They would like people to advise them on how to do that, what we would like to change etc. Of course, we can refuse to make things better right at the point where Atos are asking how to, but that feels a bit like a four year old having a tantrum. We’re grown ups and we can’t change things if we don’t explain what needs to change and why.
  •         Language used by politicians and press to discuss those claiming ESA is derogatory and demeaning. Scroungers, skivers, feckless, festering – we are called all these things. Journalism is often lazy and full of inaccuracies.
For some time now, we haven’t been unheard. Just two years ago, no-one was writing about ESA at all, other than to remind the public that we were all scroungers who could be working. Now, the Guardian, the Mirror, the Independent, Private eye, Political Scrapbook, Left wing blogs and even the Spectator are running regular stories about the failures of ESA and the WCA. Channel  4 have run some fantastic sections on the failures of ESA and even the Daily Mail have allowed blogs about ESA written by the indomitable Sonia Poulton. 

Slowly but surely, things are changing. Bit by bit we are [persuading those that matter to persuade the public that we are right and the government are wrong. 

It is frustratingly slow. The public have to read things many times over before they accept them and we still have a long way to go. But things are totally different now to two years ago and momentum is building in our favour.
  •          ESA had cross party support. There was almost total political consensus that it was good policy.
From my own point of view, this is what I most wanted to change and the thing I’ve worked hardest on. All the time we still have a Labour party blind to the suffering of sick and disabled people, they are not a Labour party. It has been achingly slow with disappointments and faux-pas at every stage. It pains me that I have had to drag Labour to every concession kicking and screaming, that some in the party still think ESA is right. It hurts me to remember some of the judgemental speeches and thoughtless, unfounded coalition policies they originally supported. 

But as I wrote here Labour have made real steps in the past year to put the mistakes of ESA behind them. They are now saying they are listening and travelling the country discussing sickness and disability policy with those actually affected. They have laid out a set of “rights” they believe sick and disabled people should be able to rely on and they have admitted ESA is a mess and isn’t working . Byrne’s Beveridge 2 speech was a turning point in which Labour started to dare to say the word disability again. I DO believe Labour are listening. They realise that we face very grave threats, that we are not just the usual suspects making a fuss. It’s up to us to tell them what we need. We can’t sit at our keyboards complaining then refuse to say what we want. 

The EDM raised by John McDonnell was signed by 114 MPs and became the 3rd most signed EDM Every day a new Labour MP or even a Lib Dem or Conservative join the growing chorus of MPs opposed to WCAs. Again, it’s slow and it’s frustrating, but we’re getting there. 

It is also now Lib Dem policy to oppose WCAs despite their actions. This might not help now, but could come in very handy in the event of a future Lib/Lab coalition,

Once the political consensus is broken, it gets much harder for the government to get away with leaving ESA a shambles. 

Jon Cruddas, the head of Labour’s policy review, has promised to make sure anything we send to Liam Byrne and Anne MacGuire goes to the very heart of discussions over future policy. I believe him because he’s a good guy who’s written articles about sickness and disability that sound just like mine. He is a politician who really understands our issues. 

I honestly believe we have a chance if we just make sure we tell Labour what they have to do and keep the pressure on them to do it. 

But we have to tell them.
  •          It’s pointless expensive and unnecessarily distressing to constantly re-assess those with disabilities so severe and profound that they will never work.
(Dealt with under delays and appeals above)
  •          The help & support politicians say people with serious illnesses and disabilities will get to find work is totally inappropriate and ineffective. It conflates disability benefits with JSA (Jobseekers Allowance) Most people who lose ESA have not found work.
As I’ve argued here and here it is no good sorting out all of the problems above if there is no work sick and disabled people can actually get or do. The work provision is woefully inadequate, the system is not going to make work pay for us and we need to totally re-design the help and support government provide. If you can take part, please leave your comments below the articles and let politicians know what you need to work and what that work should be
  •          The public were unaware of all these faults and generally thought ESA was a good policy.
Sadly, this is the area where we still have the most work to do. Most people still don’t know what’s happening and disability is not an issue they think about often or that interests them much. If we are sitting around waiting for people to wake up and say “Oh, this is terrible, we have to stop it!” they aren’t going to do that any time soon. Think how long it took for Tom Watson to expose phone hacking?  It took years to spill over into genuine public outrage. There isn’t going to be a revolution.
All we can do is chip away, every day, telling more and more people, getting them to tell even more people. Slowly but surely, opinion will change.
If you look at all I’ve written above, we’re well on the way to winning most of the points above. If we haven’t won, we’re at least at the place where we’ve won a seat around the table. We’ve made massive progress since 2010 and the truth is that with new descriptors, accessible centres staffed by respectful courteous experienced staff, more paper assessments taking place, higher support group and WRAG numbers a commitment from Labour to make rights a reality for disabled people and to really listen to what we need we have all the ingredients of success. With Atos claiming that they are willing to improve assessments  implement the Harrington changes and allow assessments to be recorded we’ve come a huge way in two years.
Of course we still have a long way to go, of course it isn’t enough but I think it shows for itself how successful a strategy of engagement and lobbying can be. We would have achieved none of this without sustained and often boring small changes, bit by bit, day by day, chipping away at everything that is warped and wrong with ESA. The government become more and more isolated by the day as the BMA, every main charity, Atos, the press and the opposition parties edge further and further away from supporting ESA.
This might not be the way everyone would do business but I don’t care about saving face or an ultimate glorious win that may never come.
I want to ACTUALLY win and that means compromise, boring detail, hard work and disappointments.
The proof of the pudding will be ESA in 2015. Tragically that will be too late for many, but better to win slowly but surely than to never win at all.
First published at Diary Of A Benefit Scrounger.

Why does everyone have to work?

An audio version of this blog post is available on episode 164 of The Pod Delusion, 40 minutes in.

A lot of tasks are carried out by people not employed to carry them out. People care for relatives, cook for neighbours, run clubs for children, look after communal gardens where they live. This is the real big society. Many of these people are not in employment at all, never mind paid to do what they do.

Others pursue hobbies that might bring great joy to them and to society, or provide useful innovations applicable to other things. Writers, inventors, amateur scientists, musicians, artists – all produce things of great worth to society. When people work all hours for an employer these tasks are neglected but when people work less or not at all they are free to pursue these things.

Parents are not valued by society for the task that they do, instead it being expected that both parents in a couple will work

There is worth in a vast number of tasks that are not part of “work” and yet these tasks are not valued by people and government does not see any worth outside of a paid job.

Current attitudes to welfare benefits seem to focus on dividing people into deserving and undeserving poor. Politicians argue that we should have more conditionality in our system; that we should return to an insurance style of benefit for out-of-work benefits so that those who have not spent enough time in work cannot claim the same benefits that those who have worked for years can. They want to take benefits away from those who don’t make enough effort to find a job. The Work Programme and Mandatory Work Activity scheme send people to do unpaid work for big businesses and charities, punishing those who refuse by taking away their tiny benefits for weeks, months or even years, even though such “work experience” is often simply manual labour that requires little training and does not help anyone to find a permanent job. Many people express the opinion that those in receipt of welfare benefits should not have “luxuries” such as Sky TV or broadband, and resent such things being paid for by benefits out of tax funds, seeing themselves as personally paying for such things. Indeed, government ministers have floated the idea of paying benefits in the form of payment cards that cannot be used to purchase alcohol or tobacco which is a terrible idea.

The question that I want to ask, though, is why does everyone have to work?

I believe the answer is that they don’t.

In our modern industrial society we have driven down the cost of production through two things: exploitation of cheap overseas labour, and mechanisation and automation. I will come back to the first of these later, but what of the second?

Mechanisation has vastly reduced the need for labour. More could be done to continue this trend, but historically it has been opposed by unions because it puts people out of work. I think the time has come to say GOOD. Let’s put people out of work. Automate everything that can be automated. The remaining jobs should be divided up between everyone who wants to work, reducing the hours of all jobs until all those who want to work have the working hours that they want.

Of course doing so would leave many people without any income, or dependant on Job Seeker’s Allowance and looking for jobs that just don’t exist. (As is already the case.) These people cannot be punished for failing to find jobs that don’t exist, that is indefensible. I propose a change in the way that society thinks about people who do not work. We must stop resenting them, stop begrudging them any small luxuries that they may have, and instead pay them a decent income that allows a decent life. But that would be unfair! Why should they get something that you do not? Well there is a solution to that. Pay a salary to everyone, working or not, deserving or not. This concept is known variously as Universal Income, Citizen’s Income, Basic Income, or combinations thereof. Here’s how it would work:

Every adult citizen would receive a salary, paid to them by the government, of enough to cover basic living costs. It would perhaps be set at a level that would cover one person living in a shared house or a couple living together.

To finance this, the tax allowance would be abolished. Instead the citizen’s income would be paid tax free, and all earnings from other sources would be taxed at the standard rate from the start. Nearly all in-work and out of work benefits would also be abolished. Anyone without a job would stop receiving Job Seeker’s Allowance and Housing Benefit as those are replaced by the Citizen’s Income. Indeed, Housing Benefit to anyone who is in work would also cease.

Sick and disabled people would no longer receive ESA. They would receive Citizen’s Income too. In their case, though, they have additional expenses and a higher cost of living caused by needing to adapt things around them and inability to access some services so they would still receive Disability Living Allowance to provide for that, and care would still be funded by government.

The benefits that Citizen’s Income would bring are large. There would be no need to means-test people, and means testing is expensive. There would be no reason to track people’s efforts to look for work, and there would be no reason to punish anyone for not working – eliminating a huge bureaucracy required to do those things. There would be no stress and fear of losing benefits imposed on people who for one reason or another cannot work, no Work Capability Assessment – leading to improvements in health and quality of life.

Of course people will object to those choosing not to work, which is why we all need to approach the idea with less judgement. Although benefit fraud is tiny and the number of people who would choose not to work is low, such people do exist. There are people who do not want to work and there are people who are just plain unemployable. Under the current and proposed systems they would be punished for not finding work and ultimately end up homeless or dependant on family or charity if anyone at all. I do not think doing this is the action of a humane society. Would it not be better to let these people stay out of the workplace, avoid employing people who do not want to be there or would not do a good job? It may well be that eventually such people will decide that they do want to work and will then find a job that they want to do and pay taxes. There are many people that do want to work but only part time, and a Citizen’s income would enable them to do so where the current system would make it impossible.

Allowing more people to work for less hours might also have the benefit of making some jobs more attractive so that work currently carried out overseas or by immigrants becomes feasible to carry out locally, thus working towards solving the problem of exploitation of cheap overseas labour.

Such a system would have to be introduced alongside rent caps to prevent private landlords from taking advantage of more available income by inflating rents. I cannot pretend that a Citizen’s Income would not be very attractive to people in some other countries too, and short of introducing the idea worldwide we would have to consider carefully how to treat immigrants. (This sentence makes me uncomfortable, but I think it does need to be considered.)

Citizen’s Income would:

  • Replace the tax allowance and the benefits system
  • Make savings on means testing and administration
  • Allow freedom to work part time, full time or not at all
  • Allow the pursuit of hobbies and interests away from work
  • Produce inventions and innovations that benefit us all
  • Result in the production of books, music and art
  • Allow people to perform services for others and their community
  • Shift the balance of power from employers to employees
  • Provide security when jobs are not secure
  • Remove the fear and stress of disability assessments

The whole idea of Citizen’s Income necessitates a huge shift in the way that our society thinks but since many are calling for a rethink of our welfare system anyway I think now is the time to consider it.

Disclaimer: I am no expert, so if I have made any errors or misrepresented anything please let me know.

Further Reading

Basic income guarantee [Wikipedia]

Basic Income Earth Network

Citizen’s Income Trust

A Universal Basic Income

Global Basic Income Foundation

 

Iain Duncan Smith is proud of getting people off benefits

IDS - "We've heard enough of you"
“We’ve heard enough from you.”

Owen Jones confronted Iain Duncan Smith with the names of two people who have died as a result of the work capability assessment. He did not react well. I urge you to watch this video of the last part of Question Time, particularly the last minute if you want to see what IDS is really like.

“Hang on a second, we’ve heard a lot from you. Let me tell you something. I didn’t hear you screaming about two and a half million people who are parked, nobody saw them for over ten years, not working, with no hope, no aspiration, we are changing their lives, I am proud of doing that, getting them off benefit is what we are going to do.”

Iain Duncan Smith is proud of getting people off benefits. Never mind that there is no work for them to go to even if they can, and that the way lives are being changed is by sending people further into poverty and homelessness. Not only that, but he thinks that being “parked on benefits” and left alone is a bad thing. Well those of us on permanent sickness and disability benefits do have hopes and aspirations. We hope to not have too much pain today and we aspire to getting the care that we need so that we can undertake something entertaining that isn’t lying in bed waiting to die. We probably don’t aspire to being a rich Tory, which is probably similar to being dead in the head of Iain Duncan Smith. As for nobody seeing sick people, now they are being reassessed so frequently that they are committing suicide. Winning an appeal at tribunal often leads to an immediate call to another assessment.

https://twitter.com/crazybladeuk/status/271197324594786305

Dead people don't get benefits
Dead people don’t get benefits – cartoon by @dochackenbush

Further Reading

Brian Mcardle: Atos benefits bullies killed my sick dad, says devastated Kieran, 13

Karen Sherlock: How many more disabled people will die frightened that their benefits will be taken away?

Karen’s Story – RIP Karen Sherlock, Disability Rights Campaigner – Died June 8th 2012

Hundreds more: The People’s Review of the Work Capability Assessment